Friday, August 10, 2012

Life Sucks at Times, aka "What's Going On?"

Well, just when we thought Smurf 3 would be coming home, he develops several problems at once.  His stomach became distended, and it's just full of air.  They cannot find any reason why at this point, so that's frustrating.  Then, his liver is showing enlarged veins but looks healthy; however, his test levels are coming back high.  They tried a medication, but he's starting to look jaundiced and every flarking test is coming back negative.  So now they're moving him to a hospital 45 minutes away because the pediatric liver specialist (didn't even know you could get THAT specialized) is at this other hospital.  I'm just frustrated and upset that we don't know what's wrong with him and how to fix it at this point.  He's wanting to eat, but because of the stomach issues they can't allow him to eat until the air is out of his intestines.  Even though he's getting IV nutrients, he's wanting a bottle. 

So now my wife will have to spend even more time at the hospital and driving during the day, which means i'm going to have to go back to doing drop offs and pick ups of the other two Smurfs.  Plus, if i'm going to be able to visit Smurf 3 while maintaining my job I will need to keep going at night.  So instead of getting home around 1 a.m. I probably won't get back until 2 or later, and that's if I don't shorten my time with Smurf 3.  Not to mention the extra strain this will place on my ability to work to make enough money to cover all our current and extra bills.  After all of this I think the credit card companies actually own a piece of my asss

I'm not mad or frustrated at anyone, just at the situation.  I appreciate all the doctors, nurses, and nurse practitioners that have been trying to figure this out; I just wish this would end so I could have my entire family home.

We haven't been telling anyone about the medical issues, but there have been messages asking about when he would come home.  My wife doesn't want to tell anybody anything, but I'd rather just tell them and then say whether or not we want any help or visitors rather than just ignoring everyone.  I appreciate that people care and want to know, but I don't want the headache of people trying to visit, offering to cook, clean, etc.  I laughed when one of my sister-in-laws offered to cook dinner for us when she doesn't even cook for her own family; she has most take-out places on speed dial.  To be honest the only help that has been worth it has been my neighbor, who mowed my backyard without saying anything or wanting recognition. 

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